June 10, 2014 Issue
Thanks for Making National Kidney Month a Success!
Thanks to the many partners who helped make March 2014 NKDEP’s most successful National Kidney Month to date:
During March, the NKDEP website received an estimated 5,000 hits from partner activity—a ten-fold increase from 2013—due to our partners combined 11 newsletter articles, 27 Facebook posts, and 31 tweets.
Of special note, NKDEP would like to thank its Kidney Sundays partners, Chi Eta Phi Sorority, Inc , and ADA Live Empowered , for the integral role they played in expanding the reach of the Kidny Sundays program to 108 faith communities across 60 cities in 24 states. We’d also like to thank the NIA for their collaboration on creating this year’s World Kidney Day Statement .
NKDEP recently updated its Program summary, NKDEP: Reducing Disparities, Improving Care—A Summary Report . The Report highlights the work the Program has undertaken in the last five years to reduce the morbidity and mortality associated with chronic kidney disease by promoting evidence-based interventions to improve understanding, detection, and management of CKD.
Using the Chronic Care Model as an organizing principle, the report details NKDEP’s
The report also contains a list of NKDEP’s key partners and describes the recognition by outside organizations which the Program has received over the past few years. It concludes with a look at NKDEP’s future directions, outlining how it will continue to leverage the Chronic Care Model as a strategic platform for organizing its efforts to translate new knowledge into improved outcomes. The report is available for download from NKDEP’s Program Summary web section.
NKDEP Concludes Pilot Testing of Promotores Program
The Riñones, Tesoros Education Program for Community Health Workers aims to help fill the kidney disease education gap within the Hispanic community. The Program uses community health workers’ (or promotores’) experience and access to the community to promote kidney health among Hispanic/Latino diabetes patients. NKDEP recently concluded the testing phase of the program pilot study, which evaluated 100 participants (including diabetes patients and their family members/ caregivers) from Los Angeles and New York to measure the effectiveness of the program’s educational materials in raising awareness about kidney disease.
NKDEP is currently analyzing data from the pilot study and anticipates making results available in the fall. However, preliminary data indicate most participants did not have a basic knowledge or understanding of kidney function, chronic kidney disease (CKD), or the transition from CKD to kidney failure at baseline. Observation of patient education sessions indicated maintaining healthy eating habits is a key challenge among participants. The sessions also helped identify several common misconceptions about CKD management and treatment, such as belief that there is a cure for CKD, which may result from a lack of Spanish-language CKD information. Additionally, after being exposed to the program, several participants expressed a commitment to make kidney health a priority and spread the message within their families, friends, and communities.
Based on results of the pilot study, NKDEP will revise program materials as necessary in preparation for a national launch. If you speak Spanish and would like to receive updates about NKDEP’s promotores program in Spanish, sign up for NKDEP’s Riñones, Tesoros Noticias newsletter.
New Case Study for Dietetic Education Focuses on Transition to Kidney Failure
NKDEP has added a new case study to its growing suite of materials to support dietetic educators in teaching students and interns about nutrition interventions for CKD patients. The new case study follows Juan Cruz, a 60-year-old Puerto Rican man with a recent diagnosis of chronic kidney disease due to type 2 diabetes, through his transition to kidney failure. In reviewing and discussing the case, students will learn to identify and counsel patients with CKD.
The new case is part of a set of materials designed to provide students and interns with the basic information they will need to counsel patients who have CKD once they become practicing registered dietitians. The set includes a presentation that covers kidney function, kidney disease, and basic information about the CKD diet in the outpatient setting, as well as four additional outpatient case studies, which challenge students to think critically about nutrition interventions and apply their CKD nutrition knowledge.
Cystatin C Certified Reference Material Now Available
Cystatin C is recognized as a useful marker for kidney function. Because cystatin C measurement procedures do not produce uniform results, equations to estimate GFR have been restricted for use only with results from the specific method used to develop an equation. A certified reference material is now available from the Institute for Reference Materials and Measurements to standardize the calibration traceability of routine clinical laboratory measurement procedures.
Some commercial cystatin C measurement procedures have been calibrated to be traceable to the new reference material; and equations to estimate GFR using cystatin C are now being published. For more information about cystatin c equations and measurement procedures, please visit the NKDEP website.
Resource Highlights Current Federal CKD Activities
Get the latest information about how the Federal government is involved in the multi-faceted and interconnected response to CKD.
The Federal Chronic Kidney Disease (CKD) Matrix—an online resource that summarizes CKD-related activities implemented by seven Federal agencies across six response categories—has been revised to include the latest Federal CKD efforts
Review efforts by Federal agency:
Or by response area:
During National Kidney Month in March, NKDEP collaborated with the Centers for Disease Control and Prevention and the National Association of Chronic Disease Directors to share important CKD information and resources with directors of chronic disease programs within state health departments. The presentation, Addressing Chronic Kidney Disease in People with Multiple Chronic Conditions , by Andrew Narva, Director of NKDEP, addressed CKD in the setting of diabetes, high blood pressure, and cardiovascular disease. Additionally, NKDEP Associate Director Eileen Newman discussed opportunities for collaboration between NKDEP and state health departments and provided a review of NKDEP’s patient education and clinical care resources.
Dr. Narva helped health care professionals tackle the challenging issue of addressing the kidney complications of diabetes in a recent webinar hosted jointly by the National Diabetes Education Program (NDEP) at the NIH and the Diabetes Care and Education Group (DCE), a practice group of the Academy of Nutrition and Dietetics. More than 300 people attended Diet Counseling for People with Diabetes and Kidney Disease, which described the burden of kidney disease due to diabetes in the United States and described dietary interventions to slow progression and reduce complications. Last year, the DCE invited NDEP’s partnership network to attend its webinar, “Exercising on Insulin- Staying in Balance,” and the two organizations plan to keep working together to cross promote webinars about management and prevention of diabetes and its complications. To view slides of the May 20 Webinar on diabetes and kidney disease, please visit http://ndep.nih.gov/resources/ResourceDetail.aspx?ResId=475 .
Federal Agencies Discuss CKD Patient Safety at March KICC Meeting
Representatives from Federal agencies convened to discuss CKD patient safety during the semiannual Kidney Interagency Coordinating Committee (KICC) meeting held on March 7 in Bethesda, Maryland. The NIDDK-hosted meeting featured presentations and updates from:
A meeting summary is now available on the NKDEP website.
Now Available: NKDEP Coordinating Panel Meeting Summary
The NKDEP Coordinating Panel (CP) meeting on December 16, 2013, in Bethesda, MD, featured presentations describing some of the important work NKDEP is undertaking to improve CKD care. The meeting featured the following presentations:
A full summary of the meeting is now available
Recent and Upcoming Events:
Page last updated: July 9, 2014