During March, National Kidney Month, the National Kidney Disease Education Program (NKDEP) focused on raising awareness among African Americans about the impact of kidney disease in the community and the importance of testing those at risk. A mix of national media, social media, grassroots, and online outreach efforts produced great results. Some highlights include:
An NIH-funded study has demonstrated that a high level of FGF23, a hormone that regulates phosphate, is associated with an increased risk of kidney failure and death among chronic kidney disease patients. The study, led by researchers at the University of Miami, was based on data obtained from patients enrolled in the Chronic Renal Insufficiency Cohort (CRIC) Study, a major effort funded by NIH to better understand risks for progression and cardiovascular disease in people with chronic kidney disease. Results appeared in the June 15 issue of the Journal of the American Medical Association (2011; 305(23): 2432-2439). Read the NIH press release for more information.
NKDEP has updated some of its CKD nutrition materials to reflect the latest sodium recommendations for people with CKD from the newly released USDA/HHS Dietary Guidelines for Americans. Materials impacted by the new recommendation include:
If you have been using these documents please take a moment to replace your files or print outs with the latest versions, which are available at the Nutrition for CKD Patients page.
NKDEP has begun working with Spanish-speaking dietitians to adapt our nutrition factsheet series for CKD patients into Spanish. We are looking for more experts to help us with this effort. If you are interested in providing feedback on these materials to help ensure they are easy-to-understand and culturally appropriate, please contact us.
The Centers for Medicaid and Medicare Services' Medicare Improvements for Patients and Providers Act of 2008 (MIPPA) provides Medicare coverage for Kidney Disease Patient Education Services for individuals with advanced CKD. To support the implementation of the benefit, many organizations are creating materials for health professionals and educators to use when educating their patients on CKD. Tools that are currently available and in development include:
NKDEP and the Indian Health Service are working together to develop the Kidney Disease Education Kit - a six-lesson, online kit for patient educators that features materials from NKDEP, NIDDK, NIH, and CMS. These materials are intended to be used by health professionals educating patients with lower literacy levels. Each lesson includes objectives, a suggested outline, take away resources for patients, additional clinical information for educators, and sample outcomes assessment questions.
The Medical Education Institute (MEI) recently released a free CKD education toolkit called How to Have a Good Future with Kidney Disease. The toolkit includes six ready-to-use PowerPoint presentations with speaker's scripts, learning objectives, quizzes and answer keys, and a how-to guide.
The National Kidney Foundation has developed a new patient education program entitled, Your Treatment, Your Choice. Your Treatment, Your Choice offers a comprehensive adult education approach, includes all the materials needed for implementation and evaluation, and is free to qualified professionals, including physicians, physician assistants, nurse practitioners, and clinical nurse specialists.
NKDEP Director Andrew Narva, MD, recently started a Twitter handle to share useful information with health professionals related to CKD. Andy will tweet about topics such as CKD risk factors, best practices for CKD treatment and management, tips and resources for patient education, and relevant NIH research. Andy hopes this information will also help start conversations among health professionals nationwide about what is happening in the field related to innovative practices, CKD management questions/issues, the latest news and research, and more. Follow Andy at @NarvaNKDEP.
NDEP Offers Resources to Help People Prevent and Manage Diabetes During the Summer Months
Summer is a time to attend family reunions and social gatherings. Also, during these gatherings, people tend to stray from healthy food choices to foods higher in calories, fat and sugar and decrease their physical activity. The National Diabetes Education Program (NDEP), a joint program of the NIH and the Centers for Disease Control and Prevention, and NKDEP partner, provides free resources to help health care professionals assist patients with preventing or managing diabetes. If you work with people with diabetes and those at risk for the disease, summer is a great time to remind them to make small changes to live well.
NDEP has several resources available to help health care professionals help their patients make positive lifestyle changes. If you're searching for healthy recipes in both English and Spanish, Tasty Recipes for People with Diabetes and Their Families (Ricas recetas para personas con diabetes y sus familiares) is a bilingual booklet filled with diabetes-friendly recipes. Health information, such as nutrition facts and alternative ingredients for people with diabetes, is included to help keep summertime dishes healthy and delicious.
Small Steps. Big Rewards. Your GAME PLAN to Prevent Type 2 Diabetes: Information for
Patients is a three-booklet package that helps people assess their risk for developing diabetes and implement a program to prevent or delay the onset of the disease. It also includes an activity tracker and a fat and calorie counter.
For more ways to help people with diabetes and those at risk make healthy food choices and get active this summer, check out NDEP's feature articles: "Ten Ways to Shape Up Your Family Reunion to Prevent Type 2 Diabetes" and "If You Have Diabetes, You Can Work Out Those Summer Eating Habits!"
The Director of the NIH is seeking nominations to fill vacant appointments to the 2011 Council of Public Representatives (COPR) roster. To be considered for the COPR, candidates should have a strong interest in and some familiarity with the NIH as a leading federal resource for research funding and training, clinical studies, and health information, and must be in a position to communicate regularly with the broader public about COPR and NIH activities. Applications are due Friday, July 29, 2011, and are available online at http://copr.nih.gov/nomination.
Page last updated: March 1, 2012