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U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES

Improving the understanding, detection, and management of kidney disease.

Surveillance

This section describes surveillance activities and programs of the Federal government related to chronic kidney disease.

Centers for Disease Control and Prevention (CDC)

In collaboration with the University of California at San Francisco and the University of Michigan, CDC implemented a national surveillance system for chronic kidney disease (CKD). The national CKD Surveillance System  , available through an interactive Web site, documents the burden of CKD and its risk factors in the U.S. population over time and tracks the progress of our efforts to prevent, detect, and manage CKD. It also provides the means for evaluating, monitoring, and implementing quality improvement efforts by both federal and nonfederal agencies, and for monitoring kidney disease objectives for Healthy People 2020 . CDC and its partners continue to identify existing local, state, and national sources of CKD data; identify gaps and deficiencies in the existing data sources; and propose creative solutions to fill the gaps and remedy the deficiencies. The project team developed a plan to integrate all data sources into the CKD Surveillance System and examines the need for creating new data sources related to CKD.

CDC is also providing supplementary funding to the National Health and Nutrition Examination Survey for the collection and analysis of a laboratory specimen for creatinine and albumin. CDC’s National Center for Health Statistics directs the data collection contractor in establishing and revising protocols for the nephrology component of the survey and in preparing training and field manuals.

Contact Information
Desmond Williams, MD, PhD
CKD Initiative Team Lead
CDC Division of Diabetes Translation
Phone: 770–488–1158
Email: DEWilliams@cdc.gov
Web: http://www.cdc.gov/ckd

Last Updated: June 1, 2014

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Department of Defense (DoD)

The VA/DoD Clinical Practice Guideline for Diabetes Mellitus recommends monitoring the percentage of diabetics with at least one test for microalbumin or who had evidence of medical attention for existing nephropathy. This is the same metric recommended by the National Diabetes Quality Improvement Alliance. Currently, it is up to each clinic or military treatment facility to monitor this metric. The VA/DoD Clinical Practice Guideline for the Management of Chronic Kidney Disease has several additional recommended metrics that are currently monitored at the local level.

Contact Information
James Ellzy, CDR, US Navy
Director of Clinical Quality
Phone: 703-681-0064
Email: James.ellzy@amedd.army.mil
Web: www.tricare.mil

Last Updated: March 1, 2012

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Health Resources and Services Administration (HRSA)

The Organ Procurement and Transplantation Network (OPTN) collects and manages scientific data about organ (kidney) donation and transplantation. OPTN maintains a secure Web-based computer system for operating the nation's organ transplant waiting list and recording recipient/donor organ characteristics.

The Ad Hoc Disease Transmission Advisory Committee (DTAC) is an OPTN committee composed of organ procurement organization staff, transplant center coordinators, transplant surgeons, and infectious disease, malignancy, and pathology specialists. DTAC considers issues related to the transmission of disease through organ transplantation. DTAC works together with the Centers for Disease Control and Prevention to examine individual potential disease transmission cases reported to the OPTN in an effort to confirm transmissions where possible. It reviews aggregate data on all reported cases to assess the risk of donor disease transmission in organ transplantation in the U.S. with the goal of providing:

  • Education and guidance to the transplant community toward preventing future disease transmission
  • Input in developing policy to improve the safety of organ donation through the reduction of donor derived transmission events.

DTAC may identify disease-transmission related patient safety issues to be addressed, as appropriate, by the OPTN.

Contact Information
Robert Walsh
Director, Division of Transplantation
Phone: 301-443-6839
Email: rwalsh@hrsa.gov
Web: www.organdonor.gov

Last Updated: June 1, 2014

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Indian Health Service (IHS)

The burden of kidney disease among diabetics has been monitored for several years by the IHS Diabetes Program through a yearly chart audit, and includes measure of kidney function, abnormal protein excretion, and blood pressure control. The IHS Diabetes Care and Outcomes Audit ("the Audit")  is a process for assessing diabetes care and health outcomes for American Indians and Alaska Natives with diagnosed diabetes. IHS, Tribal, and Urban Indian health care facilities nationwide voluntarily participate in this process each year by performing a self-audit of medical records for their patients with diabetes. By carefully reviewing the results of individual audits, facilities can identify areas for improvement and implement strategies to work toward the goal of providing all diabetes patients with the highest quality of care, as outlined in the IHS Standards of Care for Patients with Type 2 Diabetes .

Contact Information
Karen L. Sheff, MS
Biostatistician/Data Manager
Phone: 505-248-4965
Email: Karen.Sheff@ihs.gov
Web: www.ihs.gov/MedicalPrograms/Diabetes/

Last Updated: June 1, 2014

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National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

The United States Renal Data System (USRDS) is a national data system that collects, analyzes, and distributes information about CKD and end-stage renal disease (ESRD) in the United States. The USRDS is funded directly by NIDDK in conjunction with the Centers for Medicare & Medicaid Services (CMS). USRDS staff collaborates with members of CMS, the United Network for Organ Sharing (UNOS), and the ESRD networks, sharing datasets and actively working to improve the accuracy of ESRD patient information.

Along with producing the Annual Data Report on End-Stage Renal Disease in the United States, the USRDS also produces the Researcher's Guide, fulfills data requests, provides standard analysis files and specialized datasets to researchers, and presents the results of its research at national conferences and in peer-reviewed journals.

Contact Information
Paul Eggers, PhD
Director, Kidney and Urology Epidemiology Program
Phone: 301-594-8305
Email: EggersP@extra.niddk.nih.gov
Web: www.usrds.org

Last Updated: June 1, 2014

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VA has recently partnered with the University of Michigan Kidney Epidemiology and Cost Center (UM-KECC) to develop a comprehensive national chronic kidney disease registry. The purpose of this registry is to identify Veterans at risk of kidney disease and those with established acute kidney injury, chronic kidney disease or end stage renal disease and further track the burden of disease in these patients and processes of care and health outcomes over time. Registry Steering Committee members and Advisory Committee members were selected in both VA and UM-KECC who are subject matter experts, specialists and consultants.

VA has also partnered with the Centers for Disease Control (CDC) serving as a reference health care population in the CDC’s Chronic Kidney Disease Surveillance System.

Contact Information
VHA National Kidney Program
Email: VHANationalKidneyProgramOffice@va.gov
Web: http://www.medicalsurgical.va.gov/kidney/program.asp

Last Updated: June 1, 2014

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This information was reviewed by KICC agency representatives. It may not reflect new or future agency activities. For more information, please contact the listed representatives.

Page last updated: June 4, 2014