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U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES

Improving the understanding, detection, and management of kidney disease.

Public Education & Outreach

This section describes current outreach and education programs of the Federal government related to chronic kidney disease.

Department of Defense (DoD)

The DoD has been actively collaborating with NKDEP in the review of patient education materials pertaining to chronic kidney disease (CKD). These materials will be widely available to DoD providers for patient dissemination within the clinic and will be available directly to patients via DoD's CPG shopping cart at https://www.qmo.amedd.army.mil .

Contact Information
James Ellzy, CDR, US Navy
Director of Clinical Quality
Phone: 703-681-0064
Email: James.ellzy@amedd.army.mil
Web: www.tricare.mil

Last Updated: March 1, 2012

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Health Resources and Services Administration (HRSA)

HRSA promotes public awareness of and support for organ donation though public education and outreach activities, materials development and promotion, and collaborative relationships with the organ donation and transplantation community, and increasingly, use of the Internet and social media.

Examples of print materials for public distribution include brochures and "Health Passports for Life," which provide space for people to record all of their health information for ready access and also contains information on organ donation and healthful living, and "Decision: Donation," a model instructional package for high school students about the importance of organ and tissue donation. Online and digital outreach efforts include organdonor.gov and the organdonor.gov Facebook page which provide substantial information about donation and transplantation and opportunities for visitors to access their state donor registries to sign up as organ donors.

HRSA has produced several short videos for use online and by donation professionals in the field. Many tell the stories of recipients and donors representing Americans from various ethnic backgrounds. Most recently HRSA produced a short film titled “Organ Donation and Transplantation: How Does It Work?”, a 5-minute animated video describing the process of donation and transplantation that has received exceptionally positive feedback from the donation and transplantation community.

Public outreach activities supported by HRSA include the "Workplace Partnership for Life" (WPFL) which focuses on raising awareness of and support for organ donation among employees in workplaces throughout the United States. Most recently, the WPFL has supported a hospital campaign to involve hospitals in promoting state donor registry enrollment among their staff and within their communities. Currently, nearly 900 hospitals, 22 state and local hospital associations, 63 Organ Procurement Organizations (OPOs) and other local donation organizations are participating in this campaign. Other public outreach activities include traffic sponsorships/radio ads, and TV, radio and print public service announcements. HRSA started and continues to be supportive of the National Donor Sabbath, which is an opportunity for members of various faiths to reflect on the act of donation, and takes place two weekends before Thanksgiving every year. In FY 2011 HRSA launched a national effort targeting people 50 plus to encourage donor registration and debunk the myth that there are arbitrary age limits for donation. An English-language campaign booklet is available for public use and a Spanish/English booklet targeting the Hispanic community over 50 is nearing completion.

HRSA also funds two grant programs focused on increasing deceased donation through promotion of donor registry enrollment, family consent, and, for the first time in 2014, parental commitment for minors to become donors upon the death of a child. One program funds research projects to identify effective outreach strategies for increasing donation; the other supports projects to replicate effective donation outreach strategies.

Contact Information
Robert Walsh
Director, Division of Transplantation
Phone: 301-443-6839
Email: rwalsh@hrsa.gov
Web: www.organdonor.gov

Last Updated: June 1, 2014

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Indian Health Service (IHS)

The IHS Division of Diabetes provides information for patients, families, and communities about dialysis and transplantation, as well as links to other organizations and agencies. IHS's Division of Diabetes Treatment and Prevention provides educational resources about kidney disease in their online catalog, such as Taking Care of Your Kidneys, a 15-page booklet that informs patients on kidney damage due to bladder and kidney infections.

Access CKD patient education resources through the IHS CKD and Diabetes Hub or the IHS Online Catalog .

Contact Information
About IHS:
Division of Diabetes Treatment and Prevention
Phone: 505-248-4182
Email: diabetesprogram@ihs.gov
Web: http://www.ihs.gov/MedicalPrograms/Diabetes/index.cfm?module=home
About CKD:
Andrew S. Narva, MD, FACP, FASN
Chief Clinical Consultant for Nephrology
Phone: 301-594-8864
Email: narvaa@niddk.nih.gov

Last Updated: June 1, 2014

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National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

To educate populations at risk for kidney disease, NKDEP provides easy-to-read educational materials for the general public, African Americans, Spanish-speakers, and French-speakers. NKDEP also offers educational materials for parents about the importance of testing children at risk for kidney disease and monitoring and managing high blood pressure.

NKDEP encourages African Americans to "make the kidney connection" between diabetes, high blood pressure, and kidney disease; and get tested for kidney disease. Its Kidney Sundays initiative supports African American faith communities in learning about their risk for kidney disease and how to protect kidneys. With partners Chi Eta Phi Nursing Sorority, Inc. and the American Diabetes Association’s Live Empowered program, NKDEP holds national Kidney Sundays events each March that have reached over 350,000 people to date with messages of kidney health and high blood pressure screenings. The Family Reunion Initiative coaches African American family reunion planners on how to give an educational session on kidney disease at their family reunion. To help support these kidney champions in educating others about kidney health, NKDEP recently revamped its Get Involved web section to include interactive resources and a variety of customizable content.

To expand its reach among the Hispanic community, NKDEP launched a Spanish-language website and developed the Riñones, Tesoros. Cuídalos (Kidneys, Treasures. Take Care of Them) campaign. This campaign was created in Spanish, by Spanish speakers, to provide much needed information and resources about kidney disease to the Spanish-speaking community. As part of this campaign, NKDEP has developed and is pilot testing a promotores, or community health worker, training module. The module consists of a training manual that promotores will use to familiarize themselves with kidney disease, its risk factors, and tips for maintaining kidney health; and a flipchart that they will use as part of their diabetes educational sessions.

NKDEP aims to educate people with CKD about how to better manage their disease. It offers an overview brochure on CKD, a brochure on medication use, and a series of tip sheets on nutrition and CKD.

NKDEP supports patient education by providing resources and tools that help health professionals better educate their patients about CKD. The Explaining Your Kidney Test Results: A Tear-off Pad for Clinical Use is intended for health professionals to use when explaining kidney test results with patients. This tool is available in Spanish, Chinese, Vietnamese, and French. NKDEP also offers materials for registered dietitians to use when counseling patients with CKD, including tip sheets on protein, sodium, phosphorus, and potassium management. Each of these tip sheets is also available in Spanish, while the overview brochure Eating Right for Kidney Health is offered additionally in French.

Contact Information
Andrew S. Narva, MD, FACP, FASN
Director, NKDEP
Phone: 301-594-8864
Email: narvaa@niddk.nih.gov
Web: www.nkdep.nih.gov

Eileen Newman, MS, RD
Associate Director, NKDEP
Phone: 301-435-8116
Email: eileen.newman@nih.gov
Web: www.nkdep.nih.gov

The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) is a service of the NIDDK. The NKUDIC develops, publishes, and distributes online and printed health information on kidney diseases and promotes publications through its website , social media, health fairs, and exhibits.

NKUDIC also responds to inquiries about kidney diseases, including information, resource, and statistical data requests, for patients, caregivers, and healthcare professionals. The website includes a consumer-friendly listing of patient-advocacy organizations. Additionally, information about kidney disease and kidney problems as they relate to diabetes is available from the NIDDK’s National Diabetes Information Clearinghouse .

Contact Information
Jody Nurik
Phone: 301-496-3583
Email: jody.nurik@nih.gov
Web: kidney.niddk.nih.gov

Last Updated: June 1, 2014

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Veterans Affairs (VA)

The VA has been actively collaborating with NKDEP and the Centers for Disease Control in the review of patient education materials pertaining to chronic kidney disease (CKD). These materials are available to VA providers for patient dissemination within the clinic and are directly available to patients via VA's eKidney Clinic website , as well as through the Department of Defense's clinical practice guideline shopping cart .

VA partnered with the Medical Education Institute in 2012 to develop an interactive web-based learning system, known as the VA eKidney Clinic, to help guide Veterans through the process of managing CKD and making treatment related decisions. The eKidney Clinic is available to the public in addition to VA patients and providers via the VA National Kidney Program website .

In 2013, VA launched the VA National Kidney Program website . This website provides Veterans with convenient and quick access to a range of kidney related resources including a directory of VA outpatient dialysis facility locations, a list of VA benefits and services specific to the needs of kidney and end stage renal disease patients, and further educational resources.

Contact Information
VHA National Kidney Program
Email: VHANationaKidneyProgramOffice@va.gov
Web: http://www.medicalsurgical.va.gov/kidney/program.asp

Last Updated: June 1, 2014

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This information was reviewed by KICC agency representatives. It may not reflect new or future agency activities. For more information, please contact the listed representatives.

Page last updated: June 4, 2014