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U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES

Improving the understanding, detection, and management of kidney disease.

Public Education & Outreach

This section describes current outreach and education programs of the Federal government related to chronic kidney disease.

Department of Defense (DoD)

The DoD has been actively collaborating with NKDEP in the review of patient education materials pertaining to chronic kidney disease (CKD). These materials will be widely available to DoD providers for patient dissemination within the clinic and will be available directly to patients via DoD's CPG shopping cart at https://www.qmo.amedd.army.mil.

Contact Information
James Ellzy, CDR, US Navy
Director of Clinical Quality
Phone: 703-681-0064
Email: James.ellzy@amedd.army.mil
Web: www.tricare.mil

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Health Resources and Services Administration (HRSA)

HRSA promotes public awareness of and support for organ donation though public education and outreach activities, materials development and promotion, and collaborative relationships with the organ donation and transplantation community.

Examples of print materials for public distribution include brochures, calendars, and "Health Passports for Life," which provide space for people to record all of their health information for ready access and also contains information on organ donation and healthful living, and "Decision: Donation," a model instructional package for high school students about the importance of organ and tissue donation. Organdonor.gov, supported by HRSA, also provides substantial information about donation and transplantation.

Public outreach activities supported by HRSA include the "Workplace Partnership for Life" which focuses on raising awareness of and support for organ donation among employees in workplaces throughout the United States; traffic sponsorships/radio ads as well as a partnership with Hollywood, Health & Society to promote more accurate depictions of donation and transplantation in television programming. HRSA started and continues to be supportive of the National Donor Sabbath, which is an opportunity for members of various faiths to reflect on the act of donation, and takes place two weekends before Thanksgiving every year. In fiscal year 2011 HRSA launched a national effort targeting people 50 plus to encourage donor registration and debunk the myth that there are arbitrary age limits for donation. A campaign booklet will be available for public use.

HRSA developed and makes available to the public two documentaries (available on DVD) on organ donation and transplantation. Emmy award winning "No Greater Love" highlights the joys of life saved by transplant and the tragedies of lives lost because of organ shortage. "A Science of Miracles" chronicles the evolution of the incredible science of transplant surgery.

HRSA also funds two grant programs focused on increasing deceased donation and educating about living donation. One program funds research projects to identify effective outreach strategies for increasing donation; the other supports projects to replicate effective donation outreach strategies.

Contact Information
Richard Durbin
Acting Director, Division of Transplantation
Phone: 301–443–6804
Email: RDurbin@hrsa.gov
Web: www.organdonor.gov

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Indian Health Service (IHS)

The IHS Kidney Disease Program provides information for patients, families, and communities about dialysis and transplantation, as well as links to other organizations and agencies. IHS's Division of Diabetes Treatment and Prevention provides educational resources about kidney disease in their online catalog, such as Taking Care of Your Kidneys, a 15-page booklet that informs patients on kidney damage due to bladder and kidney infections.

Contact Information
Andrew S. Narva, MD, FACP, FASN
Chief Clinical Consultant for Nephrology
Phone: 301-594-8864
Email: narvaa@niddk.nih.gov
Web:
www.ihs.gov/MedicalPrograms/Diabetes/RESOURCES/Catalog/rde/index.cfm?module=home

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National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

To educate populations at risk for kidney disease, NKDEP provides easy-to-read educational materials for the general public, African Americans, and Spanish-speakers. NKDEP's Kidney Connection campaign encourages African Americans to "make the kidney connection" between diabetes, high blood pressure, and kidney disease; and get tested for kidney disease. The campaign is currently composed of two efforts: The Family Reunion Initiative and Kidney Sundays. NKDEP also offers educational materials for parents about the importance of testing children at risk for kidney disease.

NKDEP aims to educate people with CKD about how to better manage their disease. It offers an overview brochure on CKD, a brochure on medication use, and a series of tip sheets on nutrition and CKD.

NKDEP supports patient education by providing resources and tools that help health professionals better educate their patients about CKD. The Explaining Your Kidney Test Results: A Tear-off Pad for Clinical Use is intended for health professionals to use when explaining kidney test results with patients. This tool is available in Spanish, Chinese, and Vietnamese. NKDEP also offers materials for registered dietitians and clinical pharmacists to use when counseling patients with CKD. Lastly, for health professionals, NKDEP's website features videos that model ways to answer common patient questions (in English and Spanish) on a wide series of topics related to CKD and kidney failure.

Contact Information
Andrew S. Narva, MD, FACP, FASN
Director, NKDEP
Phone: (301) 594-8864
Email: narvaa@niddk.nih.gov
Web: www.nkdep.nih.gov

Eileen Newman, MS, RD
Associate Director, NKDEP
Phone: (301) 435-8116
Email: eileen.newman@nih.gov
Web: www.nkdep.nih.gov

The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) is a service of the NIDDK. The NKUDIC develops, publishes, houses and distributes publications about kidney and urologic diseases and promotes publications through health fairs and community events.

NKUDIC also responds to inquiries about kidney and urologic diseases—ranging from information about available patient and professional education materials to statistical data. The website includes a consumer-friendly listing of patient-advocacy organizations.

Contact Information
Jody Nurik
Phone: 301-496-3583
Email: jody.nurik@nih.gov
Web: kidney.niddk.nih.gov

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Veterans Affairs (VA)

The VA has been actively collaborating with NKDEP and the CDC in the review of patient education materials pertaining to CKD. These materials will be widely available to VA providers for patient dissemination within the clinic and will be available directly to patients via VA's MyHealtheVet website as well as through the DoD's CPG shopping cart at https://www.qmo.amedd.army.mil.

Contact Information
James Ellzy, CDR, US Navy
Director of Clinical Quality
Phone: 703-681-0064
Email: James.ellzy@amedd.army.mil
Web: www.tricare.mil

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This information was reviewed by KICC agency representatives. It may not reflect new or future agency activities. For more information, please contact the listed representatives.

Page last updated: June 6, 2012