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U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES

Improving the understanding, detection, and management of kidney disease.

Health Resources and Services Administration (HRSA) Activities

Quality improvement/Evidence of Therapy

This section describes current quality improvement and evidence of therapy programs of the Federal government related to chronic kidney disease.

Health Resources and Services Administration (HRSA)

Funded by HRSA, the Organ Procurement and Transplantation Network  (OPTN) is the unified transplant network established by Congress under the National Organ Transplant Act (NOTA) of 1984. The OPTN is a unique public-private partnership that links Organ Procurement Organizations (OPOs), transplant programs, and histocompatibility laboratories together into a national transplant system. The primary goals of the OPTN are to maximize the benefits to patients through patient-centric organ allocation policies; increase the efficiency, effectiveness, and safety of the national organ allocation and distribution system; and increase the supply of donated organs (including kidneys) available for transplantation.

The OPTN monitors the outcomes of OPOs and transplant programs by using risk-adjusted data models and assists members in improving performance outcomes through a peer-mentoring process.

As of November 15, 2013, there were 120,624 candidates on the OPTN organ waitlist of which 98,701(81.8%) were waiting for a kidney transplant.

NOTA established the Scientific Registry of Transplant Recipients  (SRTR), which provides analytic support to the OPTN in the development and evaluation of OPTN organ (including kidney) allocation and other policies. The SRTR conducts independent research to add to the body of knowledge about organ donation and transplantation. Transplant program and OPO performance reports and data are available on the SRTR website. The SRTR also makes solid organ transplantation data available to bonafide transplant researchers from the time of listing of the potential transplant recipient through graft failure or patient death.

Contact Information
Robert Walsh
Director, Division of Transplantation
Phone: 301-443-6839
Email: rwalsh@hrsa.gov
Web: www.organdonor.gov

Last Updated: June 1, 2014

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Scientific Research

This section describes basic and clinical research activities supported or sponsored by the Federal government.

Health Resources and Services Administration (HRSA)

The Clinical Interventions to Increase Organ Procurement Grant Program (funded for FY 2002-2013) provides support for the implementation and evaluation of highly promising strategies and approaches that can serve as model interventions for identifying appropriate donation candidates, evaluating donated organs (including kidneys), maintaining donor stability, and optimizing methods for organ procurement. The ultimate goal of this grant program is to increase the number and quality of deceased donor organs (e.g. heart, liver, lung, pancreas, kidney, and intestine) in the United States.

Summaries of grants previously funded through this program are available at http://organdonor.gov/dtcp/clinical.html .

Contact Information
Robert Walsh
Director, Division of Transplantation
Phone: 301-443-6839
Email: rwalsh@hrsa.gov
Web: www.organdonor.gov

Last Updated: June 1, 2014

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Public Outreach and Education

This section describes current outreach and education programs of the Federal government related to chronic kidney disease.

Health Resources and Services Administration (HRSA)

HRSA promotes public awareness of and support for organ donation though public education and outreach activities, materials development and promotion, and collaborative relationships with the organ donation and transplantation community, and increasingly, use of the Internet and social media.

Examples of print materials for public distribution include brochures and "Health Passports for Life," which provide space for people to record all of their health information for ready access and also contains information on organ donation and healthful living, and "Decision: Donation," a model instructional package for high school students about the importance of organ and tissue donation. Online and digital outreach efforts include organdonor.gov and the organdonor.gov Facebook page which provide substantial information about donation and transplantation and opportunities for visitors to access their state donor registries to sign up as organ donors.

HRSA has produced several short videos for use online and by donation professionals in the field. Many tell the stories of recipients and donors representing Americans from various ethnic backgrounds. Most recently HRSA produced a short film titled “Organ Donation and Transplantation: How Does It Work?”, a 5-minute animated video describing the process of donation and transplantation that has received exceptionally positive feedback from the donation and transplantation community.

Public outreach activities supported by HRSA include the "Workplace Partnership for Life" (WPFL) which focuses on raising awareness of and support for organ donation among employees in workplaces throughout the United States.  Most recently, the WPFL has supported a hospital campaign to involve hospitals in promoting state donor registry enrollment among their staff and within their communities. Currently, nearly 900 hospitals, 22 state and local hospital associations, 63 Organ Procurement Organizations (OPOs) and other local donation organizations are participating in this campaign. Other public outreach activities include traffic sponsorships/radio ads, and TV, radio and print public service announcements.  HRSA started and continues to be supportive of the National Donor Sabbath, which is an opportunity for members of various faiths to reflect on the act of donation, and takes place two weekends before Thanksgiving every year. In FY 2011 HRSA launched a national effort targeting people 50 plus to encourage donor registration and debunk the myth that there are arbitrary age limits for donation. An English-language campaign booklet is available for public use and a Spanish/English booklet targeting the Hispanic community over 50 is nearing completion.

HRSA also funds two grant programs focused on increasing deceased donation through promotion of donor registry enrollment, family consent, and, for the first time in 2014, parental commitment for minors to become donors upon the death of a child. One program funds research projects to identify effective outreach strategies for increasing donation; the other supports projects to replicate effective donation outreach strategies.

Contact Information
Robert Walsh
Director, Division of Transplantation
Phone: 301-443-6839
Email: rwalsh@hrsa.gov
Web: www.organdonor.gov

Last Updated: June 1, 2014

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Delivery & Payment of CKD Care

This section describes activities related to the delivery and payment of chronic kidney disease care supported or sponsored by the Federal government.

Health Resources and Services Administration (HRSA)

The primary goals of the Organ Procurement and Transplantation Network (OPTN) are to increase the effectiveness and efficiency of organ (including kidney) sharing and equity in the national system of organ allocation by establishing and maintaining policies and procedures for the field of transplantation, and to increase the supply of donated organs available for transplantation.

The OPTN efforts related to delivery of care include:

  • Facilitating the organ matching and placement process through the use of the computer system and a fully staffed Organ Center operating 24 hours a day;
  • Developing consensus based policies and procedures for organ recovery, distribution (allocation), and transportation;
  • Managing a secure Web-based computer system, which maintains the nation's organ transplant waiting list and recipient/donor organ characteristics.

HRSA supports the National Living Donor Assistance Center   (NLDAC) through a cooperative agreement with the Regents of the University of Michigan and the American Society of Transplant Surgeons. The NLDAC is a national program that assists living organ donors with travel and subsistence expenses related to the donation of an organ. Since its inception in October 2007 through the end of August 2013, NLDAC facilitated 1941 living organ transplants. Overall, through this period, NLDAC received 3918 applications for financial support.

Contact Information
Robert Walsh
Director, Division of Transplantation
Phone: 301-443-6839
Email: rwalsh@hrsa.gov
Web: www.organdonor.gov

Last Updated: June 1, 2014

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Professional Education and Outreach

This section describes education and outreach to health professionals of the Federal government related to chronic kidney disease.

Health Resources and Services Administration (HRSA)

HRSA supported a series of Organ Donation Breakthrough Collaboratives from 2003 to 2008 to disseminate rapidly practices that proved effective in increasing the number and utilization of donor organs. The Collaborative series included participation of the organ procurement organizations (OPOs), donor hospitals, and transplant programs throughout the United States. As best practices became integrated in organizational processes, this unified effort evolved into the Donation and Transplantation Community of Practice (DTCP). The DTCP is working to institutionalize donation and transplantation best practices through partnership, shared accountability, and effective leadership. Partners now include OPOs, hospitals, transplant centers, donor designation teams, and others who have an impact on organ donation and transplantation. From 2003 to August 2013, national performance on the Collaborative conversion rate (a measure reflecting the proportion of possible donors that become actual donors) has increased from 54.4 percent to 75.7 percent, surpassing the national goal of 75 percent.

Contact Information
Robert Walsh
Director, Division of Transplantation
Phone: 301-443-6839
Email: rwalsh@hrsa.gov
Web: www.organdonor.gov

Last Updated: June 1, 2014

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Surveillance

This section describes surveillance activities and programs of the Federal government related to chronic kidney disease.

Health Resources and Services Administration (HRSA)

The Organ Procurement and Transplantation Network (OPTN) collects and manages scientific data about organ (kidney) donation and transplantation. OPTN maintains a secure Web-based computer system for operating the nation's organ transplant waiting list and recording recipient/donor organ characteristics.

The Ad Hoc Disease Transmission Advisory Committee (DTAC) is an OPTN committee composed of organ procurement organization staff, transplant center coordinators, transplant surgeons, and infectious disease, malignancy, and pathology specialists. DTAC considers issues related to the transmission of disease through organ transplantation. DTAC works together with the Centers for Disease Control and Prevention to examine individual potential disease transmission cases reported to the OPTN in an effort to confirm transmissions where possible. It reviews aggregate data on all reported cases to assess the risk of donor disease transmission in organ transplantation in the U.S. with the goal of providing:

  • Education and guidance to the transplant community toward preventing future disease transmission
  • Input in developing policy to improve the safety of organ donation through the reduction of donor derived transmission events.

DTAC may identify disease-transmission related patient safety issues to be addressed, as appropriate, by the OPTN.

Contact Information
Robert Walsh
Director, Division of Transplantation
Phone: 301-443-6839
Email: rwalsh@hrsa.gov
Web: www.organdonor.gov

Last Updated: June 1, 2014

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This information was reviewed by KICC agency representatives. It may not reflect new or future agency activities. For more information, please contact the listed representatives.

Page last updated: June 4, 2014